Meet Dani Binnington
Founder of @healthywholeme
Dani (She/her) - European/white
Diagnosed in 2013 - aged 33 - Triple negative breast cancer
With every day, in every way, I am becoming healthier and stronger.
The menopause conversation is really shifting – we’re all talking about it a lot more and most of us have a much better understanding of the benefits of HRT, along with lifestyle steps that can help manage symptoms.
But there’s something that isn’t so widely discussed – and that’s menopause after cancer. It’s a totally different ballgame and people in the cancer community often feel excluded from the wider menopause conversation. That can leave women feeling even more isolated, confused and scared at what is already a deeply challenging time.
Doctors will often tell you HRT isn’t an option, depending on the kind of cancer you had, so you’re left on your own, dealing with a double-whammy of menopause symptoms and the trauma, loneliness and anxiety that can follow cancer treatment.
"Menopause after cancer really is the hidden menopause."
Here are the key reasons menopause after cancer is so different -
You have sudden and severe menopause symptoms.
Going through menopause due to cancer treatment often means it happens very suddenly and symptoms can be more severe.
Us cancer survivors don’t get the gradual hormone changes that cause perimenopausal symptoms over the course of a few years it’s more that our bodies have quit hormones cold turkey, plunging us into menopause suddenly and intensely. And it can be very scary sitting at home on your own after cancer treatment’s finished, wondering whether these symptoms are down to menopause, side effects of treatment or even cancer itself.
On top of all that, menopausal hormone changes can often trigger low mood and anxiety – which can make everything that much harder to cope with when you’re already feeling low after everything you’ve been through.
You may have to cope with fertility loss.
If you’re under 45 and still having periods, cancer treatment can bring on an early menopause - so you end up going through it long before 51, the average age a woman’s periods stop.
You may be left having to cope with the premature loss of your fertility after gruelling cancer treatment, which can be especially painful if you wanted children and haven’t had them. Even if you don’t want children or you’ve completed your family, losing your fertility early can still be very confronting.
You have to come off your HRT.
Perhaps you’d already been through menopause and were coasting along quite happily on HRT. But then you got the cancer diagnosis and had to stop it abruptly, so you’re suddenly dealing with symptoms you were managing well before.
Women often put up with menopause symptoms after cancer.
Lots of us tell ourselves we shouldn’t complain – we’ve survived a life-threatening illness so low libido, hot flushes and insomnia aren’t the end of the world. We’re lucky to be alive – we shouldn’t be moaning.
Even if you want to seek help, who do you speak to? It can be difficult to navigate the health system and know whether you should be talking to your oncologist, nurse or GP. And you may well think there’s no point anyway – you can’t have HRT and nothing can be done so you’ll just have to put up with it.
I want to change all this so here’s my 5 point manifesto for menopause after cancer -
Talk about it - Let’s start opening up about it so we all realise we’re not alone. That in itself can be a game-changer. Join my chat hub on Facebook and meet other women in the same situation.
Persist with your healthcare team - Don’t be fobbed off. Managing menopause after a cancer diagnosis may be more challenging and require more bespoke care, but it’s absolutely possible to do something about your symptoms. Think about taking someone with you to an appointment for a bit of moral support.
Download a tracker - I love the Balance app, by menopause specialist Dr Louise Newson. It helps you track your menopause symptoms so you can get a clear idea of what’s going on. That can give you a sense of control but on a more practical basis, it can also help you talk to your doctor about your symptoms without having to look back and try to remember them. I recommend printing out your results to take to an appointment.
Ask to see a specialist - As menopause care after cancer is usually more complex, you should be seen by a menopause specialist. Ask your healthcare team to refer you.
Empower yourself - You’ve been through such a lot already. You and your body deserve nourishment and care. Try my menopause nutrition tips, join us for a menopause yoga class or sign up for my Menopause Masterclass.
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